About this campaign

Having a baby is an exciting time, full of wonderment, anticipation and joy. But for women with epilepsy, becoming pregnant and having a baby is a little more complicated.

A campaign informed by real-world needs

To help us identify which information women with epilepsy want and where there are information gaps, we surveyed almost 900 women across Europe. Their personal insights have been vital in developing this website to empower women with epilepsy to talk with their medical care providers and get the medical support and advice they need.

We hope to expand this critical campaign to other global regions of the world.

Based on clinical and personal experience

This website has been developed by a working group of women with epilepsy and medical practitioners. We’re grateful for their insightful contributions.

Working group members:

Professor Gus Baker (Chair), Mrs Ann Little (Co-chair), Mrs Tea Bobinac-Krivacic, Prof Martin Brodie, Mrs Elizabeth Cunningham, Ms Erin Davies, Prof Joanna Jedrzejczak, Mrs Barbora Jones, Dr Lieven Lagae, Ms Lorraine Lally, Prof Janet Mifsud, Dr Barbara Mostacci, Dr Natela Okujava, Dr Francesca Sofia, Dr Janine Winterbottom, Ms Leonie Wollscheid.

About the International Bureau for Epilepsy

Founded in 1961 and with members (chapters) in more than 100 countries around the world, the International Bureau for Epilepsy (IBE) is an international network organisation. Our mission is to improve the social condition and quality of life of people with epilepsy and those who care for them.

We recognise the person with epilepsy as our primary stakeholder and focus on public engagement, health information, international advocacy, best practice exchange and supporting epilepsy communities.

We work collaboratively with our partner epilepsy-related organisations (professional, lay and governmental), and we are transparent and democratic in our governance and decision-making.

IBE is a US-registered not-for-profit organisation (Charter ID 721834-DNP) with tax-exempt status 501(c)(3). EID 59:2606654.

The Epilepsy & Pregnancy project has been developed with financial support from Sanofi, which has had no editorial control over project content.

Wherever you are on your journey, we have information to support you…

Thinking about having a baby - Women & Epilepsy
I'm pregnant - Women & Epilepsy
I'm already a mother - Women & Epilepsy