About this campaign

Living with epilepsy as a woman comes with its own unique challenges that extend far beyond managing seizures. This website is designed to be used as a resource for women living with epilepsy, so that they feel equipped and supported to face the diverse issues that can impact daily life.

A campaign informed by real-world needs

To help us identify which information women with epilepsy want and spot gaps in information, we surveyed almost 900 women across Europe. Their personal insights have been vital in developing these resources to empower women with epilepsy to talk with their healthcare providers and get the medical support and advice they need.

The information available on this website continues to be updated to reflect the needs of women with epilepsy worldwide.

This website and its resources are part of IBE’s broader Women and Epilepsy project.

access the survey report

Based on clinical and personal experience

This website has been developed by a working group of women with epilepsy and medical practitioners. We’re grateful for their insightful contributions.

Working group members:

Professor Gus Baker (Chair), Mrs Ann Little (Co-chair), Mrs Tea Bobinac-Krivacic, Prof Martin Brodie, Mrs Elizabeth Cunningham, Ms Erin Davies, Prof Joanna Jedrzejczak, Mrs Barbora Jones, Dr Lieven Lagae, Ms Lorraine Lally, Prof Janet Mifsud, Dr Barbara Mostacci, Dr Natela Okujava, Dr Francesca Sofia, Dr Janine Winterbottom, Ms Leonie Wollscheid.

About the International Bureau for Epilepsy

Founded in 1961 and with members (chapters) in more than 100 countries around the world, the International Bureau for Epilepsy (IBE) is an international network organisation. Our mission is to improve the social condition and quality of life of people with epilepsy and those who care for them.

We recognise the person with epilepsy as our primary stakeholder and focus on public engagement, health information, international advocacy, best practice exchange and supporting epilepsy communities.

We work collaboratively with our partner epilepsy-related organisations (professional, lay and governmental), and we are transparent and democratic in our governance and decision-making.

IBE is a US-registered not-for-profit organisation (Charter ID 721834-DNP) with tax-exempt status 501(c)(3). EID 59:2606654.

The Women & Epilepsy project has been developed with financial support from Sanofi, which has had no editorial control over project content.